You can edit almost every page by Creating an account. Otherwise, see the FAQ.

Autism

From EverybodyWiki Bios & Wiki

Art by autistic artist Luna Rose

Autism is a lifelong developmental disability involving differences in social interaction, communication, sensory processing, and behavior. Signs show up during the first three years of an autistic person's life. These signs often develop gradually, though some autistic children show typical development followed by regression.

Autism used to be split into subcategories like Asperger syndrome, classic autism, and PDD-NOS. But the differences between groups were fuzzy. They are now grouped together simply as the "autism spectrum."[1]

The number of autism diagnoses has increased in the past decades. Experts have become much better at identifying autism.[2] Whether autism is actually becoming more common is unclear.

Autistic people have formed their own community, where they support each other and advocate for social change.

Signs of autism[edit]

Every autistic person gets a unique mix of traits. They may have profound difficulties in some areas while other areas are average or above average. Autism includes strengths as well as challenges.[3][4]

Autistic people tend to experience:[5][6]

  • Difficulty picking up on social cues like facial expressions, body language, subtexts, and hints
  • Trouble making friends
  • Discomfort with eye contact[7]
  • Often being misunderstood by non-autistic people[8]
  • Sincerity
  • Communication difficulties
  • Intense, passionate interests[9][10][11]
  • Repetitive fidgeting (stimming) to self-regulate[12][13][14]
  • Need for routine[15][16]
  • Sensory over- and under-sensitivities[17][18]
  • Integrity[19][20] and resistance to peer pressure[21][22]
  • Attention to detail

The "intense world" theory suggests that autistic people experience many things more intensely.[23][24] Autistic brains generate much more information than neurotypical brains while at rest.[24] This could make autistic people more easily overwhelmed, creating a need for calm and quiet environments.

Social obstacles[edit]

The "double empathy problem" describes how it is harder for non-autistic and autistic people to relate to each other.[25][26][27][28] Non-autistic people tend to judge autistic people more harshly than they judge non-autistic people.[8][29] However, they are less judgmental when they know the person is autistic and when they understand autism better,[30][31] suggesting that improving understanding of autism could help.

Some autistic people learn to "mask" their differences in an attempt to fit in and avoid mistreatment. However, this has negative mental health effects, sometimes severe ones.[32][33][34] Autistic people are generally happier when they can be accepted for who they are.[35]

Causes[edit]

Autism is mostly genetic[36] and it begins in the womb.[37][38] Some prenatal factors (e.g. maternal infections) may increase the odds of autism.[39][40] All known teratogens (agents that affect fetal development) related to autism appear to act during the first eight weeks from conception.[12]

Parents may first notice signs of autism around the time for routine vaccinations. This has sparked numerous myths[41][42][43] that have led to disease outbreaks,[44][45] profiteering scams, and preventable deaths in children.[46] Researchers have exhaustedly proven that vaccines are not linked to autism,[47][48][49][50] yet misinformation continues. Some people have pointed out that having an autistic child is better than having a medically at-risk child who could be permanently damaged or killed by vaccine-preventable diseases.[51]

Support[edit]

Autism is lifelong.[52] The right support can make a huge difference in quality of life.

Therapies for autism include occupational therapy, speech and language therapy, counseling, and support groups.

Applied behavior analysis (ABA) is the most popular therapy, but it is controversial due to ethical issues,[53][8] questionable efficacy,[54][55] and the risk of inflicting harm.[56][57] While there has historically been very little research about potential harms,[58][59] emerging research shows a potential link to post-traumatic stress disorder.[60][61]

While support needs vary, many autistic people cannot live fully independently. Lifelong services can help them manage things like employment, health and safety, and other areas where they might need support.

Autistic people often do better when they are allowed to be themselves. Enjoying their special interests is good for their wellbeing.[62] Behavior like stimming[12][14] and avoiding eye contact[63] can help them stay calm and adapt to situations.

Autism in society[edit]

Awareness vs. acceptance

Autistic people have developed their own culture and community.

Autism rights and neurodiversity[edit]

The autism rights movement emerged to increase acceptance of autistic people and to defend against abuse.[64] Through this movement, people hope to cause others to think of autism as a difference instead of a disease. Proponents of this movement wish to seek "acceptance, not cures."[65] Key issues include abuse prevention, self-determination, the right to be themselves instead of being forced to assimilate, and seeing autism as a difference to accommodate instead of a disease to eradicate.[66][67]

Debates around autism[edit]

Debates on autism often split into two groups. The neurodiversity group argues that autism is a difference instead of a disease, and that support for autistic people should honor their individual needs and quirks. The anti-neurodiversity group argues that autism is a disease that should be cured or ameliorated through behavior training to make autistic people fit in.

For decades, conversations about autism happened without autistic voices. Autistic people are gaining more of a say in conversations about them.

External resources[edit]

References[edit]

  1. What’s the difference between autism and Asperger’s disorder?, The Conversation
  2. Wright, Jessica. The Real Reasons Autism Rates Are Up in the U.S., Scientific American
  3. Autism Strengths, Embrace Autism
  4. Russell G, Kapp SK, Elliott D, Elphick C, Gwernan-Jones R, Owens C. Mapping the Autistic Advantage from the Accounts of Adults Diagnosed with Autism: A Qualitative Study. Autism Adulthood. 2019 Jun 1;1(2):124-133. doi: 10.1089/aut.2018.0035. Epub 2019 Apr 13. PMID: 31058260; PMCID: PMC6493410.
  5. About Autism, Autistic Self Advocacy Network
  6. What is autism?, National Autistic Society
  7. For Those With Autism, Eye Contact Isn't Just Weird, It's Distressing, Science Alert
  8. 8.0 8.1 8.2 Lim, A., Young, R.L. & Brewer, N. Autistic Adults May Be Erroneously Perceived as Deceptive and Lacking Credibility. J Autism Dev Disord 52, 490–507 (2022). https://doi.org/10.1007/s10803-021-04963-4
  9. SPECIAL INTERESTS, Autism Understood
  10. Children with Autism and Their Special Interests, Autism Parenting Magazine
  11. Laber-Warren, Emily. The benefits of special interests in autism, The Transmitter
  12. 12.0 12.1 12.2 Kapp SK, Steward R, Crane L, Elliott D, Elphick C, Pellicano E, Russell G. 'People should be allowed to do what they like': Autistic adults' views and experiences of stimming. Autism. 2019 Oct;23(7):1782-1792. doi: 10.1177/1362361319829628. Epub 2019 Feb 28. PMID: 30818970; PMCID: PMC6728747.
  13. Zamzow, Rachel. Rethinking repetitive behaviors in autism, The Transmitter
  14. 14.0 14.1 Kapp, Steven. Stimming, therapeutic for autistic people, deserves acceptance, The Transmitter
  15. What makes autistic people like routine?, Embrace Autism
  16. Dealing with change - a guide for all audiences, National Autistic Society
  17. Marco EJ, Hinkley LB, Hill SS, Nagarajan SS. Sensory processing in autism: a review of neurophysiologic findings. Pediatr Res. 2011 May;69(5 Pt 2):48R-54R. doi: 10.1203/PDR.0b013e3182130c54. PMID: 21289533; PMCID: PMC3086654.
  18. Sensory differences - a guide for all audiences, National Autistic Society
  19. Autistic Science Person. Autistic People Care Too Much, Research Says, NeuroClastic
  20. Hu Y, Pereira AM, Gao X, Campos BM, Derrington E, Corgnet B, Zhou X, Cendes F, Dreher JC. Right Temporoparietal Junction Underlies Avoidance of Moral Transgression in Autism Spectrum Disorder. J Neurosci. 2021 Feb 24;41(8):1699-1715. doi: 10.1523/JNEUROSCI.1237-20.2020. Epub 2020 Nov 6. PMID: 33158960; PMCID: PMC8115877.
  21. Yafai AF, Verrier D, Reidy L. Social conformity and autism spectrum disorder: a child-friendly take on a classic study. Autism. 2014 Nov;18(8):1007-13. doi: 10.1177/1362361313508023. Epub 2013 Oct 14. PMID: 24126871.
  22. Luntz, Stephen. Children With Autism May Not Cave To Peer Pressure Like Non-Autistic Kids, Study Finds, IFL Science
  23. Markram K, Markram H. The intense world theory - a unifying theory of the neurobiology of autism. Front Hum Neurosci. 2010 Dec 21;4:224. doi: 10.3389/fnhum.2010.00224. PMID: 21191475; PMCID: PMC3010743.
  24. 24.0 24.1 Dean, Jeremy. Intense World Theory Of Autism Explained Simply, PsyBlog
  25. Damian E.M. Milton (2012) On the ontological status of autism: the ‘double empathy problem’, Disability & Society, 27:6, 883-887, DOI: 10.1080/09687599.2012.710008
  26. (2020). Outcomes of real-world social interaction for autistic adults paired with autistic compared to typically developing partners. Autism 24 (5): 1067–1080.
  27. Edey R, Cook J, Brewer R, Johnson MH, Bird G, Press C. Interaction takes two: Typical adults exhibit mind-blindness towards those with autism spectrum disorder. J Abnorm Psychol. 2016 Oct;125(7):879-885. doi: 10.1037/abn0000199. Epub 2016 Sep 1. PMID: 27583766.
  28. Double Empathy: Why Autistic People Are Often Misunderstood, Frontiers for Young Minds
  29. Sasson, N., Faso, D., Nugent, J. et al. Neurotypical Peers are Less Willing to Interact with Those with Autism based on Thin Slice Judgments. Sci Rep 7, 40700 (2017). https://doi.org/10.1038/srep40700
  30. Sasson, N. J., & Morrison, K. E. (2019). First impressions of adults with autism improve with diagnostic disclosure and increased autism knowledge of peers. Autism, 23(1), 50-59. https://doi.org/10.1177/1362361317729526
  31. Scheerer NE, Boucher TQ, Sasson NJ, Iarocci G. Effects of an Educational Presentation About Autism on High School Students' Perceptions of Autistic Adults. Autism Adulthood. 2022 Sep 1;4(3):203-213. doi: 10.1089/aut.2021.0046. Epub 2022 Aug 31. PMID: 36606156; PMCID: PMC9645669.
  32. Elizabeth M. Radulski; Conceptualising Autistic Masking, Camouflaging, and Neurotypical Privilege: Towards a Minority Group Model of Neurodiversity. Human Development 17 May 2022; 66 (2): 113–127. https://doi.org/10.1159/000524122
  33. Cassidy S, Bradley L, Shaw R, Baron-Cohen S. Risk markers for suicidality in autistic adults. Mol Autism. 2018 Jul 31;9:42. doi: 10.1186/s13229-018-0226-4. PMID: 30083306; PMCID: PMC6069847.
  34. Cassidy, S.A., Gould, K., Townsend, E. et al. Is Camouflaging Autistic Traits Associated with Suicidal Thoughts and Behaviours? Expanding the Interpersonal Psychological Theory of Suicide in an Undergraduate Student Sample. J Autism Dev Disord 50, 3638–3648 (2020). https://doi.org/10.1007/s10803-019-04323-3
  35. Cage E, Di Monaco J, Newell V. Experiences of Autism Acceptance and Mental Health in Autistic Adults. J Autism Dev Disord. 2018 Feb;48(2):473-484. doi: 10.1007/s10803-017-3342-7. PMID: 29071566; PMCID: PMC5807490.
  36. Park, Alice. This Is How Much of Autism Is Genetic, Time Magazine
  37. Hamilton, Jon. Brain Changes Suggest Autism Starts In The Womb, NPR
  38. A routine prenatal ultrasound can identify early signs of autism, study finds, Science Daily
  39. Lee BK, Magnusson C, Gardner RM, Blomström Å, Newschaffer CJ, Burstyn I, Karlsson H, Dalman C. Maternal hospitalization with infection during pregnancy and risk of autism spectrum disorders. Brain Behav Immun. 2015 Feb;44:100-5. doi: 10.1016/j.bbi.2014.09.001. Epub 2014 Sep 16. PMID: 25218900; PMCID: PMC4418173.
  40. Atladóttir, H.Ó., Thorsen, P., Østergaard, L. et al. Maternal Infection Requiring Hospitalization During Pregnancy and Autism Spectrum Disorders. J Autism Dev Disord 40, 1423–1430 (2010). https://doi.org/10.1007/s10803-010-1006-y
  41. Doja A, Roberts W. Immunizations and Autism: A Review of the Literature. Canadian Journal of Neurological Sciences / Journal Canadien des Sciences Neurologiques. 2006;33(4):341-346. doi:10.1017/S031716710000528X
  42. Gerber JS, Offit PA. Vaccines and autism: a tale of shifting hypotheses. Clin Infect Dis. 2009 Feb 15;48(4):456-61. doi: 10.1086/596476. PMID: 19128068; PMCID: PMC2908388.
  43. Gross L. A broken trust: lessons from the vaccine--autism wars. PLoS Biol. 2009 May 26;7(5):e1000114. doi: 10.1371/journal.pbio.1000114. Epub 2009 May 26. PMID: 19478850; PMCID: PMC2682483.
  44. Benecke O, DeYoung SE. Anti-Vaccine Decision-Making and Measles Resurgence in the United States. Glob Pediatr Health. 2019 Jul 24;6:2333794X19862949. doi: 10.1177/2333794X19862949. PMID: 31384629; PMCID: PMC6657116.
  45. Rao, T. S. Sathyanarayana; Andrade, Chittaranjan. The MMR vaccine and autism: Sensation, refutation, retraction, and fraud. Indian Journal of Psychiatry 53(2):p 95-96, Apr–Jun 2011. | DOI: 10.4103/0019-5545.82529
  46. McBrien, Jacqueline et al. Measles outbreak in Dublin, 2000, Pediatric Infectious Disease Journal
  47. Anders Hviid, Jørgen Vinsløv Hansen, Morten Frisch, et al. Measles, Mumps, Rubella Vaccination and Autism: A Nationwide Cohort Study. Ann Intern Med.2019;170:513-520. [Epub 5 March 2019]. doi:10.7326/M18-2101
  48. Taylor, Luke, Amy Swerdfeger, and Guy Eslick. Vaccines are not associated with autism: An evidence-based meta-analysis of case-control and cohort studies, Vaccine
  49. Knopf A. Time to remember: Vaccines don't cause autism. The Brown University Child and Adolescent Behavior Letter. 2021 Jul;37(7):9–10. doi: 10.1002/cbl.30559. Epub 2021 Jun 7. PMCID: PMC8207024.
  50. LeGare, Jennifer. Link between autism and vaccination debunked, Mayo Clinic Health System
  51. Kurchak, Sarah. I’m Autistic, And Believe Me, It’s A Lot Better Than Measles, Medium
  52. Scott D. Wright , Cheryl A. Wright , Valerie D’Astous & Amy Maida Wadsworth (2019) Autism aging, Gerontology & Geriatrics Education, 40:3, 322-338, DOI: 10.1080/02701960.2016.1247073
  53. Wilkenfeld DA, McCarthy AM. Ethical Concerns with Applied Behavior Analysis for Autism Spectrum "Disorder". Kennedy Inst Ethics J. 2020;30(1):31-69. doi: 10.1353/ken.2020.0000. PMID: 32336692.
  54. Reichow B, Hume K, Barton EE, Boyd BA. Early intensive behavioral intervention (EIBI) for young children with autism spectrum disorders (ASD). Cochrane Database Syst Rev. 2018 May 9;5(5):CD009260. doi: 10.1002/14651858.CD009260.pub3. PMID: 29742275; PMCID: PMC6494600.
  55. Bottema-Beutel K, Crowley S, Sandbank M, Woynaroski TG. Research Review: Conflicts of Interest (COIs) in autism early intervention research - a meta-analysis of COI influences on intervention effects. J Child Psychol Psychiatry. 2021 Jan;62(1):5-15. doi: 10.1111/jcpp.13249. Epub 2020 Apr 30. PMID: 32353179; PMCID: PMC7606324.
  56. Aileen Herlinda Sandoval-Norton, Gary Shkedy & Dalia Shkedy | Jacqueline Ann Rushby (Reviewing editor) (2019) How much compliance is too much compliance: Is long-term ABA therapy abuse?, Cogent Psychology, 6:1, DOI: 10.1080/23311908.2019.1641258
  57. Kupferstein, Henny. Why caregivers discontinue applied behavior analysis (ABA) and choose communication-based autism interventions, Advances in Autism
  58. Rodgers M, Marshall D, Simmonds M, Le Couteur A, Biswas M, Wright K, Rai D, Palmer S, Stewart L, Hodgson R. Interventions based on early intensive applied behaviour analysis for autistic children: a systematic review and cost-effectiveness analysis. Health Technol Assess. 2020 Jul;24(35):1-306. doi: 10.3310/hta24350. PMID: 32686642; PMCID: PMC7397479.
  59. Bottema-Beutel K, Crowley S, Sandbank M, Woynaroski TG. Adverse event reporting in intervention research for young autistic children. Autism. 2021 Feb;25(2):322-335. doi: 10.1177/1362361320965331. Epub 2020 Oct 19. PMID: 33076682; PMCID: PMC7870528.
  60. McGill, Owen and Robinson, Anna. “Recalling hidden harms”: autistic experiences of childhood applied behavioural analysis (ABA), Advances in Autism
  61. Kupferstein, Henny. Evidence of increased PTSD symptoms in autistics exposed to applied behavior analysis, Advances in Autism
  62. Grove R, Hoekstra RA, Wierda M, Begeer S. Special interests and subjective wellbeing in autistic adults. Autism Res. 2018 May;11(5):766-775. doi: 10.1002/aur.1931. Epub 2018 Feb 10. PMID: 29427546.
  63. Steweart, Rozella. Should We Insist on Eye Contact with People who have Autism Spectrum Disorders, Indiana Resource Center for Autism
  64. Trivedi, Bijal. Autistic and proud of it. New Scientist. Retrieved on 10 November 2015.
  65. Shapiro, Joseph (26 June 2006). Autism Movement Seeks Acceptance, Not Cures. NPR. Retrieved on 10 November 2015.
  66. Hookway, John. A History and Overview of the Autism Acceptance Movement, Brainwave.watch
  67. den Houting, J. (2019). Neurodiversity: An insider’s perspective. Autism, 23(2), 271-273. https://doi.org/10.1177/1362361318820762