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Choroideremia Research Foundation

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Choroideremia Research Foundation
PurposeFund choroideremia research and patient education, support and advocacy.
HeadquartersSpringfield, MA


The Choroideremia Research Foundation (CRF) is a 501(c) public charity.[1] whose mission is to raise funds in support of scientific research leading to a treatment or cure of choroideremia (CHM), a hereditary retinal-degenerative disease that causes blindness, and to educate people affected by the disease and the public [2]


CRF has funded research in CHM pathophysiology.[3], gene therapy [4], imaging [5], among other areas [6]. The international organization advocates on behalf of CHM patients within both the rare disease and the inherited retinal disease communities [7][8] and provides in person educational conferences and online virtual programs. Volunteers support the organization’s mission by coordinating fundraising events [9][10][11] Actor EJ Scott, who has been diagnosed with CHM, and his wife, actress Deborah Ann Woll, have both publicly supported CRF since 2017.[12][13]


External Links[edit]


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