Choroideremia Research Foundation
Script error: No such module "Draft topics".
The original deletion reasons can be found here:
https://en.wikipedia.org/wiki/Wikipedia:Articles_for_deletion/Choroideremia_Research_Foundation
I have done a complete rewrite. I have left out the foundations programs to educate Ophthalmologist and their patient and researcher registry databases that might also be of interest to clinicians and patients, for fear of being too close to promotionalism.
Script error: No such module "AfC topic".
| Formation | 2000 |
|---|---|
| Type | Non-Profit |
| Purpose | Fund choroideremia research and patient education, support and advocacy. |
| Headquarters | Springfield, MA |
| Website | curechm |
History[edit]
The Choroideremia Research Foundation (CRF) is a 501(c) public charity.[1] whose mission is to raise funds in support of scientific research leading to a treatment or cure of choroideremia (CHM), a hereditary retinal-degenerative disease that causes blindness, and to educate people affected by the disease and the public [2]
Mission[edit]
CRF has funded research in CHM pathophysiology.[3], gene therapy [4], imaging [5], among other areas [6]. The international organization advocates on behalf of CHM patients within both the rare disease and the inherited retinal disease communities [7][8] and provides in person educational conferences and online virtual programs. Volunteers support the organization’s mission by coordinating fundraising events [9][10][11] Actor EJ Scott, who has been diagnosed with CHM, and his wife, actress Deborah Ann Woll, have both publicly supported CRF since 2017.[12][13]
References[edit]
- ↑ IRS Exempt Organizations Select Check
- ↑ Form 990 Return of Organization Exempt from Income Tax https://www.charitynavigator.org/ein/043511754
- ↑ Edwards receives Wheelock Award https://www.waisman.wisc.edu/2020/05/06/grant-awarded-for-eye-disease-research/
- ↑ Moosajee Grant https://www.mdpi.com/1648-9144/57/1/64/htm
- ↑ Pennesi grant https://onlinelibrary.wiley.com/doi/abs/10.1002/jbio.201700313
- ↑ CRF Research https://www.curechm.org/research/#funded
- ↑ USA Today Chris Moen article: https://www.usatoday.com/story/sponsor-story/spark-therapeutics/2019/12/17/4-deeply-personal-stories-impact-genetic-testing/2640169001/
- ↑ Eye Want to Know Website – Stephanie Sims interview https://www.eyewant2know.com/community-stories/an-ironwoman-takes-on-choroideremia/
- ↑ Polkowski volunteers https://www.newstimes.com/news/article/Fighting-tunnel-vision-254317.php
- ↑ Fundraisers See by the See https://patch.com/massachusetts/swampscott/see-by-the-sea-lacrosse-benefits-choroideremia-research
- ↑ CNN Driving Blind https://www.cnn.com/2014/09/29/health/brothers-choroideremia-trip/index.html
- ↑ People Magazine EJ Scott fundraising https://people.com/celebrity/true-blood-stars-boyfriend-e-j-scott-running-to-fight-choroideremia/
- ↑ Chicago Magazine EJ Scott fundraising https://www.chicagomag.com/city-life/october-2010/ej-scott-to-run-marathon-blindfolded-comedy-for-a-cure-benefit-for-choroideremia/
External Links[edit]
References[edit]
This article "Choroideremia Research Foundation" is from Wikipedia. The list of its authors can be seen in its historical and/or the page Edithistory:Choroideremia Research Foundation. Articles copied from Draft Namespace on Wikipedia could be seen on the Draft Namespace of Wikipedia and not main one.
