Lifting The Burden

Lifting The Burden (LTB) is a non-governmental organisation incorporated in England and Wales (company number 6943628) and has charitable status (charity number 1130642). Its purposes are to develop, conduct and eventually conclude the Global Campaign against Headache (GC) in collaboration with the World Health Organization (WHO). The GC was launched in Copenhagen in 2004¹. LTB was created in 2009 to formalise the strategic partnerships of the GC, particularly with WHO. In 2011, LTB was invited into Official Relations with WHO², a recognition of its track record of achievement already³, and of the importance among WHO’s priorities accorded to the Campaign. Official Relations with WHO have been renewed every three years, most recently for the period 2023-2025, with a jointly agreed collaborative workplan.

Governance

LTB is run by its Board of Directors, who are also its Trustees, The Board determines the structure, policy, direction and strategic priorities of the GC, is responsible for LTB’s governance, and holds, administers and is accountable for its funds in pursuit of its charitable objectives. The Board appoints its own members (currently five) according to competencies, commitment and geographical location. The members elect their chairman. An Annual General Meeting is held each calendar year. Statutory accounts are produced each year and filed at Companies House. Annual reports are submitted to Companies House and the Charity Commission. LTB’s auditors (subject to annual re-appointment) are Griffin Stone, Moscrop & Co, whose address (21-27 Lamb’s Conduit Street, London WC1N 3GS) is the registered office.

Collaboration with WHO

Joint activities are conducted under a workplan agreed with WHO as the basis of Official Relations. The following workplan is agreed for the period 2020-22.

Objective 1.

Fill knowledge gaps concerning the global burden of headache

This collaboration will contribute to WHO’s work through: • collection, collation and dissemination of information; • standardization of health technology. Specifically, it will: • improve global and country health information; • build research capacity in countries; • assist WHO in formulation of evidence-based policy. This objective will be served by LTB’s ongoing population-based studies of headache burden in countries in African Region, South America, Eastern Mediterranean Region and South East Asia Region (see 7), and the global school-based study of burdens-of-child and adolescent headache, cluster-sampling from at least 18 countries in all WHO regions (see 8).

Objective 2.

Understand the interventions required to remedy the shortfalls in the provision of headache-related health-care worldwide, and how they might be implemented cost-effectively, with emphasis on primary care and integration with care for other major brain disorders.

This collaboration will contribute directly to WHO’s work in developing methodology and a common strategy to improve the quality of medical care for brain disorders in primary care. This objective will be served by LTB’s field studies of practical implementation of headache service-quality indicators in primary care (see 13b), and (in a manner to be directed by WHO) by contribution through dialogue with WHO and other non-State actors to development of a common strategy to improve quality of medical care for brain disorders in primary care.

Objective 3.

Understand the impact of headache disorders in the workplace.

This collaboration will contribute directly to WHO’s broader review of brain disorders and the workplace. This objective will be served in a manner to be directed by WHO.

References 1 Steiner, T. J. Lifting the burden: The global campaign against headache. Lancet Neurology 3, 204-205 (2004). 2 Steiner, T. J. et al. The Global Campaign, World Health Organization and Lifting The Burden: collaboration in action. J Headache Pain 12, 273-274, doi:10.1007/s10194-011-0342-4 (2011). 3 Steiner, T. J. et al. Lifting The Burden: the first 7 years. J Headache Pain 11, 451-455, doi:10.1007/s10194-010-0264-6 (2010).

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