List of hemophilia organizations
From EverybodyWiki Bios & Wiki
This is a list of hemophilia organizations, it includes the numerous organizations around the world which are formed for the support of people with hemophilia, including advocacy and education groups.[1] Hemophilia (or Haemophilia) is a group of hereditary genetic disorders that impair the body's ability to control blood clotting or coagulation, which is used to stop bleeding when a blood vessel is broken.
National and international advocacy and support organizations[edit]
International[edit]
North American[edit]
Central & South American[edit]
European[edit]
- * Association of Haemophiliacs and Thalassaemics of Ravenna
- * Association of Haemophiliacs of Veneto
- * Association of Haemophiliacs of Toscana
- * Association of Haemophiliacs of Lazio
- * Association of Haemophiliacs of Friuli-Venezia Giulia
- * Association of Haemophiliacs of Bologna
- * Association of Haemophiliacs of Trento
- * Association of Haemophiliacs of Vicenza
- * Association of Haemophiliacs of Milano
- * Association of Haemophiliacs of Brescia
- * Association of Haemophiliacs of Calabria
- * Association of Haemophiliacs of Bari
- * Association of Haemophiliacs of Campania
- * Association of Haemophiliacs of Piemonte
- * Association of Italian Haemophilia Centres
- UK Haemophilia Society (charity)
- Irish Haemophilia Society
- Haemophilia Scotland
- European Haemophilia Consortium (EHC)
- Romanian Hemophilia Association
- Ukrainian Federation of Hemophilia
- Swedish Hemophilia Society
- Danish Hemophilia Society
- Association of French Hemophiliacs
- German Hemophilia Society (DHG)
- Swiss Hemophilia Society
- Russian Hemophilia Society
- Ukrainian Hemophilia Society
- Federación Española de Hemofilia: Spanish Hemophilia Society
- Austrian Haemophilia Society
- Turkish Haemophilia Society
- Turkish Aegean Haempohilia Society
- Association of Haemophiliacs of Israel (Aleh)
- Haemo Groups : Connecting People With haemophilia And Other Bleeding Disorders
African[edit]
Asian[edit]
- Pakistan Hemophilia Patients Welfare Society® - PHPWS
- Hemophilia Federation (India)
- Hemophilia Home of China
- Hemophilia Society of Singapore
- Korea Hemophilia Foundation
Pacific[edit]
- Haemophilia Foundation Australia (HFA)
- Haemophilia Foundation of New Zealand Inc.
- Indonesian Hemophilia Society
Blood and factor safety groups[edit]
- Tainted Blood
- Birchgrove Group self-help group for people with hemophilia and HIV
- Living Stories
- Family Annual Meeting of Hemophiliacs in Ohio
Other organizations[edit]
Non-profit organizations[edit]
- La Kelley Communications - free books and other educational resources.
- Coalition for Hemophilia B
- Inalex Communications - education and support organization dedicated to meeting the needs of all those living with a bleeding disorder.
- Carol Kasper, M.D. - compilation of free scholarly articles.
- Comprehensive Bleeding Disorders Center - education, support groups, advocacy, and treatment for Illinois residents living with genetic bleeding disorders.
For profit organizations[edit]
- Hemophilia Village by Wyeth pharmaceuticals
- Haemophilia Life - A resource for patients, carers and healthcare professionals by Wyeth pharmaceuticals
- HemophiliaMoms.com a Resource for Hemophilia Families by CSL Behring
- Haemophiliacare.co.uk - A resource for patients and caregivers by Baxter pharmaceuticals
- Haemophilia the official journal of the World Federation of Hemophilia published by John Wiley & Sons.
- Comprehensive Health Education Services - CHES - Haemophilia Awareness - CHES inspires awareness and self-reliance for patients with chronic health conditions, their families, and their communities.
References[edit]
- ↑ List of National Hemophilia Sites World Federation of Hemophilia
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