soQuiet
soQuiet is a tax-exempt nonprofit organization dedicated to misophonia advocacy, support, and education.[1] Based in Overland, Missouri (part of Greater St. Louis), soQuiet gained 501(c)(3) tax-exempt status from the United States Internal Revenue Service in August 2021.[2] The organization's mission is to provide resources and support for individuals affected by misophonia, a sensory-based disorder characterized by strong negative reactions to specific sounds or visual stimuli associated with those sounds.[3][4] It advocates the idea that misophonia is best understood as a distinct and valid diagnostic entity.[5][6]
Mission and structure
soQuiet’s mission statement is, “soQuiet offers advocacy, support, and resources for people who suffer from misophonia so that they may lead productive and serene lives.”[3] The organization has a Board of Directors, all of whom have personal connections to misophonia (i.e., either they or their loved one experiences misophonia).[7] The board is supported by an additional Scientific Advisory Team, as well as an operations team made of volunteer staff.
Programs
soQuiet offers several key programs and services:
1. Free Misophonia Information Cards: The organization distributes business card-sized information cards about misophonia worldwide at no charge.[8]
2. Misophonia Research Pool: soQuiet maintains a centralized registry of over 1,200 participants for misophonia research.[9]
3. Misophonia Student Research Grants: The organization has awarded small grants (on the order of $1,000–$2,000 USD each) to over 13 students conducting misophonia research.[10][11]
4. Peer Support Groups: soQuiet runs virtual peer-led support meetings for various groups affected by misophonia, including adults, teens, LGBTQ+ adults, and family members.[12]
Additional programming hosted by soQuiet, including a misophonia clinician registry, lived experience advisory services for researchers, a store to purchase misophonia-related apparel, and high-quality educational materials about misophonia are present on the organization's website.[3]
Impact and Recognition
As of 2025, soQuiet has distributed over 15,000 free misophonia information cards globally. The organization has received recognition for its transparency and impact, including:
- Candid Platinum Seal of Transparency (2024)[2]
- Top-Rated Nonprofit Award from GreatNonprofits (2022, 2023)[13]
References
This article "SoQuiet" is from Wikipedia. The list of its authors can be seen in its historical and/or the page Edithistory:SoQuiet. Articles copied from Draft Namespace on Wikipedia could be seen on the Draft Namespace of Wikipedia and not main one.
- ↑ "Does slurping or loud chewing enrage you? You may have misophonia". National Geographic. Retrieved 12 March 2025.
- ↑ 2.0 2.1 "soQuiet: Misophonia Advocacy - GuideStar Profile". GuideStar. Retrieved 2025-02-27.
- ↑ 3.0 3.1 3.2 "soQuiet Misophonia Advocacy". soQuiet Misophonia Advocacy. Retrieved 2025-02-27.
- ↑ "How Do I Get Some Help With My Misophonia". Psychology Today. Retrieved 2025-03-12.
- ↑ Perez, V. W., Friedman, A. (17 June 2023). "Misophonia matters: A case study of the role of brain imaging in debates over new diagnoses". Sociology of Health & Illness. 46 (S1): 92–109. doi:10.1111/1467-9566.13679. ISSN 1467-9566. PMID 37329250 Check
|pmid=value (help). - ↑ "Living Out Loud, Headphones Nowhere to Be Found". New York Times. Retrieved 12 March 2025.
- ↑ "soQuiet Board of Directors". soQuiet Misophonia Advocacy. Retrieved 2025-02-27.
- ↑ "Free Misophonia Cards". soQuiet Misophonia Advocacy. Retrieved 2025-02-27.
- ↑ "Misophonia Research Participant Pool". soQuiet Misophonia Advocacy. Retrieved 2025-02-27.
- ↑ "Research Grant Recipients". soQuiet Misophonia Advocacy. Retrieved 2025-02-27.
- ↑ "About Research Grants". AP News. Retrieved 2025-03-12.
- ↑ "Misophonia Peer Support Meetings". soQuiet Misophonia Advocacy. Retrieved 2025-02-27.
- ↑ "soQuiet Misophonia Advocacy Reviews and Ratings". Great Nonprofits. Retrieved 2025-02-27.
