RareGuru
RareGuru is a social smartphone application[1][2] launched in May of 2020, designed to connect "caregivers, parents, and patients"[3] with rare diseases. The app was created by 13-year-old Claire Barrow and her family[4][5] after she, her mother and grandmother were diagnosed with the genetic disease hypophosphatasia in 2019.[6]
Claire is credited for the idea and creating the app because she wanted to create a community where she could connect with other people with similar diagnoses or symptoms[4] especially those who are near her age, according to Global Genes.[7] Claire is also credited for her contribution toward the family's therapy pigs at a local hospital.[8]
References
- ↑ "RareGuru: Rare Diseases". App Store. Retrieved 2020-12-23.
- ↑ "RareGuru: Rare Disease Patient & Caregiver Support - Apps on Google Play". play.google.com. Retrieved 2020-12-23.
- ↑ Sensory 5. "Frequently Asked Questions". RareGuru. Retrieved 2020-12-23.
- ↑ 4.0 4.1 "Tampa teen creates app to connect people fighting rare diseases". wtsp.com. Retrieved 2020-12-23.[dead link]
- ↑ "Tampa Teen With Rare Bone Disorder Launches RareGuru App To Connect 400 Million People With Rare Diseases Globally". www.tampabaynewswire.com. May 4, 2020. Retrieved 24 December 2020.
- ↑ "This Woman Had Crippling Insomnia for 2 Years—and It Was a Symptom of Something Serious". Health.com. Retrieved 2020-12-23.
- ↑ "App Helps Rare Disease Patients Find Others with the Same Condition". Global Genes. 2020-05-06. Retrieved 2020-12-24.
- ↑ "Therapy Pigs Thunder and Bolt Are Happy to Trade Belly Scratches and Hugs for Smiles". PEOPLE.com. Retrieved 2020-12-24.
External links
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