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RareGuru

From EverybodyWiki Bios & Wiki

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RareGuru is a social smartphone application[1][2] launched in May of 2020, designed to connect "caregivers, parents, and patients"[3] with rare diseases. The app was created by 13-year-old Claire Barrow and her family[4][5] after she, her mother and grandmother were diagnosed with the genetic disease hypophosphatasia in 2019.[6]

Claire is credited for the idea and creating the app because she wanted to create a community where she could connect with other people with similar diagnosis or symptoms[4] especially those who are near her age, according to Global Genes.[7] Claire is also credited for her contribution toward the family's therapy pigs at local hospital.[8]

References[edit]

  1. "RareGuru: Rare Diseases". App Store. Retrieved 2020-12-23.
  2. "RareGuru: Rare Disease Patient & Caregiver Support - Apps on Google Play". play.google.com. Retrieved 2020-12-23.
  3. Sensory 5. "Frequently Asked Questions". RareGuru. Retrieved 2020-12-23.
  4. 4.0 4.1 "Tampa teen creates app to connect people fighting rare diseases". wtsp.com. Retrieved 2020-12-23.[dead link]
  5. "Tampa Teen With Rare Bone Disorder Launches RareGuru App To Connect 400 Million People With Rare Diseases Globally". www.tampabaynewswire.com. May 4, 2020. Retrieved 24 December 2020.
  6. "This Woman Had Crippling Insomnia for 2 Years—and It Was a Symptom of Something Serious". Health.com. Retrieved 2020-12-23.
  7. "App Helps Rare Disease Patients Find Others with the Same Condition". Global Genes. 2020-05-06. Retrieved 2020-12-24.
  8. "Therapy Pigs Thunder and Bolt Are Happy to Trade Belly Scratches and Hugs for Smiles". PEOPLE.com. Retrieved 2020-12-24.

External links[edit]





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