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Survivor Corps (covid)

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Survivor Corps
Formation2020
Membership
over 170,000
Founder
Diana Berrent
Website{{URL|example.com|optional display text}}

Survivor Corps is a non-partisan, grassroots movement representing COVID-19 Survivors, with an emphasis on the those in the United States. Survivor Corps was founded by Diana Berrent while she was recovering from COVID-19. The group was launched as a public Facebook group where COVID-19 survivors could share their stories. Survivor Corps developed into a formal organization focused on COVID-19 patient advocacy, under the direction of Diana Berrent, Founder, Karen Harris, Managing Director and Suzanne Pincus, Director of Media and Partnerships operating under the fiscal sponsorship of Multiplier.

History[edit]

Survivor Corps is a grassroots movement in the United States. The organization aims to connect, support, educate and motivate those affected by COVID-19, including colleagues, families, and friends in order to mobilize as many as possible to support all ongoing scientific, medical and academic research.[1][2]

At the start of the COVID-19 pandemic, convalescent plasma from COVID-19 survivors was one of the few available treatments for those with COVID. Survivor Corps advocated for plasma donation and collection[3], connected patients to donors and joined blood centers and medical institutions leading the collection effort.[4][5][6] The organization was an active member of The Fight Is In Us, a collaboration between research institutions, pharmaceutical companies, philanthropists, government agencies, members of the blood industry and advocates who came together to seek answers, educate the public, and develop potential treatments for COVID-19.[7]

Dr. Natalie Lambert, an Associate Professor of Biostatistics & Health Data Science at the Indiana University School of Medicine, partnered with Survivor Corps in June 2020 to study the symptom sequelae of COVID-19 patients, conditions that are now known as “Long COVID” or “post COVID conditions.” Over 5000 survivors participated.[8][9] The data spurred additional research looking at electronic health records to determine the lasting impact of COVID infection.[10]

Survivor Corps partnered with Columbia University (Principal Investigator Dr. Wendy Chung) to design Recovery Corps, a study to better understand how individuals recover from COVID-19 infection, linking symptoms with serological data, and the Yale vaccine study (Principal Investigator, Dr. Akiko Iwasaki), to examine how vaccines might improve the symptoms of Long COVID.[11] Survivor Corps is engages in Citizen Science and advocates with a handful of advocacy organizations for additional research and funding for Long COVID.[12]

The organization's website is included in the United States Library of Congress Coronavirus Web Archive. The organization launched its GotCOVID campaign to educate the public about monoclonal antibody treatment for newly diagnosed COVID-19 patients and to connect them with treatment facilities.[13] Survivor Corps provides a directory of Post COVID-19 Care Centers around the world where Long COVID patients can seek care.[14][15]

Issue stances[edit]

Survivor Corps advocates for funding for COVID-19 related research, including patient-centered, social research, improved data collection and analysis, the development of health care practices for the treatment of Long COVID and acute COVID-19, government backed interventions and benefits, a COVID disease registry, health equity, and a COVID commission.

Awards[edit]

Diana Berrent and the Survivor Corps team have been recognized with the following awards:

References[edit]

  1. Greene, Brittany; Kriegstein, Leonard. "COVID survivors bond over disease's aftermath in online support groups". nydailynews.com. Retrieved 22 July 2021.
  2. Hoey, Peggy Spellman (21 May 2021). "LI's Diana Berrent On Fortune's World's 50 Greatest Leaders List". Port Washington, NY Patch. Retrieved 22 July 2021.
  3. "Opinion | We need smart solutions to mitigate the coronavirus's impact. Here are 46". Washington Post. 8 April 2020. Retrieved 17 July 2021.
  4. Aleccia, Jonel (12 May 2020). "Market For Blood Plasma From COVID-19 Survivors Heats Up". NPR.org. Retrieved 22 July 2021.
  5. Fonrouge, Gabrielle (12 April 2020). "Heroes of the Day: Coronavirus survivors give blood to help others". New York Post. Retrieved 22 July 2021.
  6. Gentile, Dan (14 July 2020). "Digital cure: This COVID-19 Facebook group may be the world's biggest research tool". SFGATE. Retrieved 22 July 2021.
  7. Thomas, Katie; Weiland, Noah (17 April 2021). "The Covid-19 Plasma Boom Is Over. What Did We Learn From It?". The New York Times.
  8. "COVID-19 'long-haulers' report nearly 100 symptoms for more than 100 days". NBC News. Retrieved 17 July 2021.
  9. Rubin, Rita (13 October 2020). "As Their Numbers Grow, COVID-19 "Long Haulers" Stump Experts". JAMA. p. 1381. doi:10.1001/jama.2020.17709. Retrieved 20 July 2021.
  10. Belluck, Pam (8 March 2021). "Many 'Long Covid' Patients Had No Symptoms From Their Initial Infection". The New York Times. Retrieved 20 July 2021.
  11. Sweet, Jacqueline (13 May 2021). "NY COVID Advocate Spurs Yale Study On Vaccinating Long-Haulers". Mid Hudson Valley, NY Patch. Retrieved 22 July 2021.
  12. Curwen, Andrew (26 April 2021). "'Long haul' COVID-19 sufferers take a page from AIDS/HIV activism to be heard". Los Angeles Times. Retrieved 19 July 2021.
  13. Pereira, Ivan (1 March 2021). "COVID survivors network launches site to help patients get antibody treatments". ABC News. Retrieved 22 July 2021.
  14. Loria, Kevin. "People With Lingering Coronavirus Symptoms Are Turning to Post-COVID Clinics". Consumer Reports. Retrieved 20 July 2021.
  15. Caceres, Vanessa (21 May 2021). "How Do Post-COVID Care Clinics Help Long COVID Patients?". US News and World Report. Retrieved 20 July 2021.
  16. "World's 50 Greatest Leaders". Fortune Magazine. Retrieved 14 July 2021.
  17. "Unsung Heroes 2020". Atlantic Council. Retrieved 14 July 2021.

External links[edit]


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